In 2026, we set up the UK Silicosis Registry (UK SR) supported by funding from the RBHH Charity. The UK SR is based at Imperial College London.
A Registry is like a survey that collects health information about people with a specific medical condition. In the UK SR, these are people with silicosis who have developed the condition from exposure to silica dust in their jobs. Bringing together information on people across the UK means we can better understand silicosis and how best to treat it. We can also compare patients with silicosis in the UK with those in other countries.
This is an observational study, which means we are not testing any new treatments but instead collect information about work histories, medical histories and test results recorded during usual clinic visits with your respiratory clinical teams. The data is pseudo-anonymised so that individuals cannot be identified.
At the moment, only patients seen in the Royal Brompton Hospital Occupational Lung Disease clinic are able to take part but the plan is to expand this to other services around the UK in the near future.
For further information on the study, please contact the chief investigator Dr Johanna Feary (j.feary@imperial.ac.uk).
